The Leukaemia Society (UK)

 

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The Leukaemia Society (U.K.) is dedicated to ensuring that more people with Leukaemia survive, have the best possible quality of life and that their families and carers get the support they need.
 

Helping to Save Lives

The Leukaemia Society (U.K.) raises money devoted to the recruitment of volunteer bone marrow donors, research, education and patient care.

 

History

Since The Leukaemia Society (U.K.) was formed it has developed into a charity that raises money devoted to the recruitment of volunteer bone marrow donors, research, education and patient care.

The Leukaemia Socieety (U.K.) helps to improve the lives of people affected by blood cancer. We provide practical, medical and emotional support and campaign for better cancer care. Cancer affects us all. We can all help.

The Leukaemia Society (U.K.) is dedicated to ensuring that more people with leukaemia survive, have the best possible quality of life and that their families and carers get the support they need. Facing cancer, whether as patient, carer or member of the family, is a life-changing experience. The Leukaemia Society (UK) works with people as they come to terms with and manage these changes, in particular by providing relevant information and emotional, social and psychological support.


Education

The following methods have been adopted to help educate the public about leukaemia and the needs of leukaemia sufferers.

  • An awareness campaign is held annually.
  • Publicity for donor recruitment campaigns greatly increases the number of information enquires we receive. We respond to these enquires not only with information on the importance of bone marrow donor recruitment but also with other general information on leukaemia.
  • 'The Link', The Leukaemia Society's newsletter, is published twice a year to keep people up to date with developments in the charity and its role in the fight against leukaemia.
  • Talks on leukaemia are arranged at every opportunity.

 

 

About Leukaemia

  • Leukaemia, a Greek word meaning white blood, was identified in 1845. Leukaemia represents just over 5% of all cancers. The first drugs that were effective for the treatment of leukaemia did not appear until the 1950's.

Twenty years ago, patients diagnosed with leukaemia faced a poor prognosis. Thanks to developments in medical research and new treatments, around seven in every 10 children, and three in every 10 adults survive acute leukaemia after treatment.

Leukaemia is a malignant disease (cancer) of the blood and bone marrow. It is characterized by the uncontrolled accumulation of blood cells. Types of leukaemia are grouped by the type of cell affected and by the rate of cell growth. Leukaemia is either acute or chronic.

When people speak of "Leukaemia" there are a variety of specific conditions that include leukaemia, aplastic anaemia, lymphoma, myeloma and related blood diseases.

Leukaemia is the most common form of childhood cancer, and non-Hodgkin's lymphoma is the fifth most commonly occurring cancer. However, more adults than children are diagnosed with leukaemia each year.

When you are looking for information about leukaemia, it really helps to know the proper medical diagnosis so that you can find the correct information.

Leukaemia or Leukemia - US and UK spelling

It's not surprising that spelling of medical terms is confusing. Leukaemia is the English spelling, while Leukemia is the American spelling!

 

 

The origins of The Leukaemia Society (U.K.) go back to 1994 when leukaemia sufferers John Triteos and Anna Georgiou, who needed bone marrow transplants to save their lives, began making a desperate appeal for bone marrow donors to come forward.

Friends and family of the two young people got together and in conjunction with the Anthony Nolan Bone Marrow Trust worked very hard in organising clinics to try to enlist more Greek and Cypriot donors in order to find matches for John and Anna. Since then many donors have come forward and their names have been added to the register of names held by the Anthony Nolan Bone Marrow Trust, although many more are needed.

 

We mainly care for people with leukaemia but we also care for people with other related diseases. Our services are always free of charge to patients and their families, which means that we constantly need to raise more and more funds.

We are here to help improve the lives of people affected by cancer, both those living with cancer and also their families and carers.

We have limited patient accommodation for patients in London for treatment; our aim is have make accommodation available to more patients.

The charity is best known for its campaign to increase the number of donors on the Bone marrow Register.

 

The Karaiskakion Bone Marrow Register

The search for a donor for John Triteos and Anna Georgiou highlighted the shortage of donors of Mediterranean origin. This meant that, because of their genetic background, leukaemia sufferers worldwide were being denied the chance of life.

It was clear that the best chances of successful recruitment would be from a Mediterranean country. The Leukaemia Society (U.K.) worked very hard to make, this possibility, a reality.

On Wednesday 12th November 1997, President Clerides of Cyprus inaugurated the Karaiskakion Foundation, a register of bone marrow donors. The Foundation, which owes its creation to the continuous effort and encouragement of The Leukaemia Society (U.K.), is situated near the British Embassy in Nicosia, in a building donated by the Cyprus Government. The centre is in memory of Andreas Karaiskakis, a five year old boy who died of leukaemia, John Triteos and Anna Georgiou.

The Society’s idea to help establish a bone marrow register in Cyprus was supported by the Anthony Nolan Bone Marrow Trust. The Trust undertook, free of charge, the training of the Bio Chemists that were to work at the Foundation, which now runs under the same lines as the Anthony Nolan Bone Marrow Trust.

The Karaiskakion Foundation is a great achievement.   The Foundation now has over 100,000 bone marrow donors registered; taking into account the population of Cyprus this is a world record.

The bone marrow register of the Karaiskakion Foundation is now linked and has access to bone marrow registers worldwide.

Many patient, from around the world have found a compatible donor through the Karaiskakion Foundation. A few years back many of these patients would not have had this second chance. The Karaiskakion and the hard work of all the people behind it have made this second chance possible.

 

 

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